In our Diabetes Stories series, people living with diabetes open up about their journeys, challenges, and the experiences that shape their lives.
- Type 1
- Type 2
- LADA / Type 1.5
- Type 3c
- Gestational
- Prediabetes
Hello! Who are you? And tell us a little bit more about your diabetes.
Hey everyone! My name is Lewis Butler. I’m 26 years old, and currently living in England. I’ve been living with Type 1 diabetes for 2 months.I was diagnosed with type 1 diabetes in February 2020. I currently work in IT, specializing in Cybersecurity and Digital Forensics. I love meeting new people, playing sports, and being in the outdoors.
Ever since being diagnosed, I have connected and interacted with many T1D’s who are supportive, and it allows me to see how other people deal with it. It has given me the confidence to share my T1D journey.
The type 1 diagnosis did come as a huge shock to me, and it has been hard for me to come to terms with the fact that I have had this disease for the rest of my life. I am fortunate enough to live in the U.K., where healthcare is free, and I don’t have to pay for my medication and any other kit that I need.
“My diagnosis did come as a huge shock to me and has been hard for me.”
Your treatment
How do you treat your diabetes, did a lot change over the past years and are you able to manage it well?
Luckily, I have amazing friends, family, co-workers, and an amazing diabetes team at the hospital who are always available to provide advice to me at any time and give me great support.
Currently, I use the long acting insulin Tresiba and the rapid action insulin Novorapid at every meal and for corrections. I like to stay active and follow healthy habits, as this helps.
I think I manage my diabetes well because my sugars are well controlled. I am always keeping my blood glucose readings in range. However, the mental issues with diabetes have been hard for me as there is a lot to take in and to be aware of, especially with just recently being diagnosed, which I know will get easier in the long term.
Can you recognize the symptoms of a low/high blood sugar? Do you test often and can you tell a bit more about your experiences with low blood sugar?
Yes, I can recognize them. I get shakiness, dizziness, jelly legs, start sweating and hungry.
I check my blood sugars at least eight times a day, and I currently have to prick my fingers.
I use fast-acting glucose tablets, Haribo candies, or whichever snacks I can lay my hands on.
Food and diet
How does your diabetes affect your eating and do you find being on a diet restrictive?
I always make sure I have three meals a day and try to keep to the same times each day, but I currently work shifts where, on some days, this is not possible.
For breakfast, I normally have cereal (Bran Flakes) or scrambled eggs and toast around 8 a.m.
Lunch is either at 12 a.m. or 1 p.m., depending on how busy I am with work. It is often a chicken dish, or I will have some tuna. Sometimes, I may have some leftovers from the night before. I always make sure I have snacks during the day, either some fruit, cheese, or granola bars.
Dinner I have around 6 pm or 7 pm. Normally I have some kind of meat dish with either salad, vegetables, or rice/pasta. I never skip any meals.
I love pizza! I have also started baking a lot with my best bake being peanut butter cookies. I like eating out at Italian and burger restaurants.
I don’t vary my insulin dose if I eat something different. I try to follow the same routine no matter what I eat. Or I will avoid bad food altogether.
I try to drink at least 3 liters of water a day.
I don’t find being on a diet restrictive, but I do find it annoying when people ask me about eating a certain food. Before being diagnosed, I had always had a healthy diet, so I didn’t mind it. There is definitely a misconception about people with type 1 diabetes and the food we can eat. We can eat what we want, but we need to ensure that we inject the correct amount of insulin to cover the carbohydrates in the food.
Do you believe that a plant based diet can improve diabetes? Did you ever experiment with this?
I think that for anyone, a plant based diet can have positive and negative effects. Obviously, more vegetables, fewer carbs, and processed foods are healthier for anyone.[/vc_column_text]
Do you have a hard time eating out in a restaurant? And what are you thoughts on making this easier?
Adding carbs information to restaurant menus would make life so much easier!!
“You can refuse food you don’t want and blame it on diabetes—no one will ever argue!”
Exercise and work
Does your diabetes restrict you from exercise or your daily job?
I try to exercise at least 3 to 4 times a week. I either go to the gym or go for a run of 5 or 10 kilometers on the coast.
I currently work in IT. The job sometimes has an effect on my blood sugar readings, depending on how stressful my day has been.
Final
Do you have any positive or negative effects because of your diabetes?
No, I just always make sure I have a balanced and healthy diet.
The hardest part is the general toll it takes. You have to think about everything differently to someone without diabetes. Whether that is food, exercise, keeping hypo treatments with you at all times, collecting supplies from the pharmacy and more. It is tiring at times.
The best part is free prescriptions for life, meeting awesome people, refusing food you don’t want, and blaming it on diabetes—no one will ever argue!
I can get really frustrated when things aren’t on track and I sometimes worry about the future.
What is the best advice that you can give to non-diabetics, new diagnosed diabetics and diabetics?
It can be challenging and tiring and not being able to comment on the condition because they do not understand it and how it affects each individual.
As a recently diagnosed type 1 diabetic, I have reached out to fellow diabetics who have said it gets easier and have provided me with a lot of advice. Since I was diagnosed, I have learned so much. You will too.
Do your best to look after yourself. Don’t hesitate to ask for support and utilize your medical professionals’ expertise.
What would you ask the other diabetics?
What’s your funniest diabetes-related story?
Share your thoughts in the comments—I can’t wait to hear from you!
Ready to share your story with the world?
At Diabetic Me, we dive into the real-life stories of people living with diabetes, uncovering the challenges, triumphs, and everything in between. Through these powerful stories, we aim to shed light on what it truly means to live with diabetes, offering understanding, inspiration, and support.
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Ely, I’d love to know more about how you balance your love for sports and outdoor activities with managing your T1D. It’s something I’ve been trying to figure out myself and any tips would be greatly appreciated.
well from what I know you just gotta keep monitoring your levels n maybe take it easy? idk not a doctor but seems common sense
Thanks for bringing this up, Britanny. I’m also very interested in hearing about how Ely manages this.
not to say im against technology but do you ever wonder if were too dependent on it? like for T1D management and stuff. Not sure if its all as great as they say.
hey Ely, just read ur story n I gotta say its really inspiring to someone like me whos also juggling T1D n loving the outdoors. keep it up!
yeah, the T1D community’s really something, ain’t it? Always there to back each other up.